Diagnosis
Crompton, Denise / Michaud, Shaunee / Nilsen, Richard J
Rare Disease" the diagnosis that no parent ever wants to hear. "This book gives a heartbreaking expos¿f what life is like for families that have a member with a rare disease, " explains Carolyn Paisley-Dew, ISMRD Board Member. "It follows the journey of 13 families who have one or more children with a rare disease called Mucolipidosis, as they wade through the erratic diagnosis process, medical muck-ups, endless pain, a plethora of medical app...