The Troubled Dream of Genetic Medicine
Wailoo, Keith (Professor of History, Princeton University) / Pemberton, Stephen (Assistant Professor, New Jersey Institute of Technology)
With Tay-Sachs, cystic fibrosis, and sickle cell disease as a powerful backdrop, the authors reveal how these maladies -- freighted with contentious ethnic and racial meanings for many Americans -- became topics of biological fascination and crucibles of social debate. They unveil a complex story: about different kinds of suffering and faith, about unequal access to the promises and perils of modern medicine, and about how Americans consume in...