Lena was two years old when she started to drink a lot of water. After a long, uncertain and anxious time, she was diagnosed with Diabetes Insipidus or 'water diabetes'. After further examinations it became clear that Lena suffers from the very rare disease LCH (Langerhans cell histiocytosis). The consequences are usually treatable, but the cause is still unknown.


Since Lena and her brother Remo are still so small, it is difficult to explain why she always has to go to the hospital and take medication that sometimes makes her feel bad. From the beginning we made up little stories during the hospital visits to make the different situations easier to understand. That is where the idea for this little book came from. We hope that other children and their families who have to experience something similar can also benefit from the story of DinoLena.


The book is available in Hardcover, eBook and Paperback and translated in different languages,


English DinoLena - The brave little girl that teaches the small Langerhans cells how to swim.
ISBN 978-3-9525656-3-6 (Hardcover)
ISBN 978-3-9525656-7-4 (eBook)
ISBN 978-3-9525656-9-8 (Paperback)


Also available in the following languages:
Dutch (Original title) DinoLena - Het dappere meisje dat de Langerhanscelletjes zwemmen leert.
Swiss German DinoLena - S'tapfere Meitli, wo dä chline Langerhans-Zelle schwümme biibringt.
German DinoLena - Das tapfere Mädchen, das den kleinen Langerhans-Zellen das Schwimmen beibringt.


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Contact us: dinolena.fightslch@gmail.com